Tsiku lomaliza la February chaka chilichonse ndi International Day of Rare Diseases.Monga dzina lake limatanthawuzira, Matenda osowa amatanthauza matenda omwe ali ndi chiwerengero chochepa kwambiri.Malinga ndi tanthauzo la WHO, matenda osowa amawerengera 0,65 ‰ ~ 1 ‰ mwa anthu onse.M'matenda osowa, zotupa zosowa zimakhala zocheperako, ndipo zotupa zomwe zimakhala zosakwana 6/100000 zitha kutchedwa "zotupa zosowa".
Posachedwapa, FasterCures Non-invasive Cancer Center idalandira wophunzira waku koleji wazaka 21 Xiaoxiao wokhala ndi chotupa choyipa cha 25 cm mthupi mwake.Awa ndi matenda osowa kwambiri otchedwa "Ewing's sarcoma", ndipo ambiri mwa odwala ali pakati pa zaka 10 ndi 30.Popeza chotupacho ndi chachikulu kwambiri komanso chowopsa, banja lake lidaganiza zopita ku Beijing kuti akapeze chithandizo.
Mu 2019, msungwana wazaka 18 nthawi zambiri amamva kupweteka pachifuwa ndi msana komanso kumva chikwama.Banja lake linapita naye kuchipatala kuti akamupime, ndipo panalibe vuto lililonse.Iye ankaganiza kuti mwina watopa ndi maphunziro ake a kusekondale, choncho anaika pulasitala ndipo ankaoneka kuti wamasuka.Pambuyo pake, nkhaniyo inasiyidwa.
Patatha chaka chimodzi, Xiaoxiao adamva kuwawa ndipo adapezeka ndi Ewing's sarcoma pomuyeza mobwerezabwereza.zipatala zingapo analimbikitsa opaleshoni pambuyo mankhwala amphamvu."Sitikutsimikiza, komanso tilibe chidaliro chochiza matendawa," adatero Xiaoxiao mosapita m'mbali.Anali wodzaza ndi mantha a chemotherapy ndi opaleshoni, ndipo pamapeto pake adasankha chitetezo cham'manja komanso chithandizo chamankhwala achi China.
Mu 2021, kuwunikanso kunawonetsa kuti chotupacho chidakulitsidwa mpaka 25 centimita, ndipo ululu wakumbuyo kumanja kunali kokulirapo kuposa kale.Xiaoxiao adayamba kumwa ibuprofen kuti athetse ululu.
Ngati palibe chithandizo chothandiza, zochitika za Xiaoxiao zidzakhala zoopsa kwambiri, banja liyenera kuika mtima wawo pakamwa kuti likhale ndi moyo, kudandaula za imfa kudzachotsa Xiaoxiao mphindi iliyonse.
"N'chifukwa chiyani matenda osowawa akutichitikira?"
Mwambiwu umati, mphepo yamkuntho ingabuke kuchokera kumwamba koyera, tsogolo la munthu n’losadziwika bwino mofanana ndi mmene nyengo ilili.
Palibe amene angadziwiretu zam’tsogolo, ndipo palibe amene angadziwiretu zimene zidzachitikire thupi lake.Koma moyo uliwonse uli ndi ufulu wokhala ndi moyo.
Maluwa a m'badwo womwewo sayenera kufota mofulumira kwambiri!
Xiaoxiao, akuyenda pakati pa chiyembekezo ndi kukhumudwa, adabwera ku Beijing ndikusankha chithandizo chosasokoneza.
Focused ultrasound ablation kwa nthawi yayitali ndi matenda ofanana, ndipo kupulumutsa miyendo kwachitika bwino kwa odwala omwe ali ndi zotupa za mafupa omwe akuyang'anizana ndi kudulidwa, komwe kuli kochepa kuposa Xiaoxiao.
Opaleshoniyo idachitika panthawi yake, chifukwa opaleshoniyo idachitika ali maso, Xiaoxiao analira mofatsa, kapena kudandaula chifukwa chosalungama, kapena kuthokoza Mulungu pomutsegulira khomo lina.Kulira kwake kunali ngati kumasula moyo, koma mwamwayi zotsatira za opaleshoni ya tsikulo zinali zabwino, ndipo panali chiyembekezo cha moyo.
Malinga ndi madotolo, minofu yofewa sarcoma ndi chotupa chosowa kwambiri chomwe chimakhala chochepera 1/100000.Chiwerengero cha milandu yatsopano ku China ndi yochepera 40,000 chaka chilichonse.Metastasis ikachitika, nthawi yopulumuka yapakatikati ndi pafupifupi chaka chimodzi.
"Sarcomas yofewa imatha kuchitika m'zigawo zonse za thupi, ngakhale pakhungu."
Madokotala adanena kuti kuyambika kwa matendawa kumabisika, ndipo zizindikiro zofananira zidzawoneka pokhapokha ngati chotupacho chikuponderezedwa pa ziwalo zina zozungulira.Mwachitsanzo, wodwala yemwe ali ndi minofu yofewa ya sarcoma ya m'mphuno akuchiritsidwa mu dipatimenti ya matenda osowa.Chifukwa kutsekeka kwa mphuno sikunachire kwa nthawi yayitali, kuyesa kwa CT kunapeza chotupacho.
"Komabe, zizindikiro zofananira sizili zachilendo, monga mphuno yodzaza, zomwe zimachitika kwa aliyense ziyenera kukhala chimfine, ndipo palibe amene angaganize za chotupa, zomwe zikutanthauza kuti ngakhale atawonetsa zizindikiro, wodwalayo sangawone dokotala. nthawi.
Nthawi yopulumuka ya minofu yofewa ya sarcoma imagwirizana ndi siteji.Pamene metastasis ya fupa imachitika, ndiko kuti, mochedwa, nthawi yapakati yopulumuka imakhala pafupifupi chaka chimodzi. "
Chen Qian, dokotala wamkulu wa FasterCures Center, adanena kuti ma sarcomas amtundu wofewa amapezeka makamaka mwa achinyamata, chifukwa panthawiyi, minofu ndi mafupa onse ali pamlingo wokulirakulira komanso kukula, ndipo hyperplasia ina yosadziwika bwino imatha kuchitika pakapita ma cell mwachangu. kuchuluka.
Ena akhoza kukhala oopsa hyperplasia kapena zotupa precancerous poyamba, koma popanda chisamaliro panthawi yake ndi chithandizo pazifukwa zosiyanasiyana, pamapeto pake zingayambitse matenda a sarcoma yofewa.
"Nthawi zambiri, chiwopsezo cha chotupa cha achinyamata ndichokwera kwambiri kuposa cha akulu, chomwe chimatengera kuzindikira msanga, kuzindikira msanga komanso kulandira chithandizo msanga, koma achinyamata ambiri amapeza chotupacho mochedwa kwambiri ndipo amataya mwayi wochiza. , choncho mulimonse mmene zingakhalire, atatu ‘oyambirira’wo ndi ofunika kwambiri.”
Chen Qian anachenjeza kuti anthu ambiri azaka zapakati ndi okalamba akhala ndi chizolowezi chodziyezetsa thupi nthawi zonse, komabe pali achinyamata ambiri omwe sanatero.
“Makolo ambiri amadabwa ana awo atapezeka ndi chotupa, sukulu imakonza zoti chaka chilichonse azipimidwa, ndiye n’chifukwa chiyani sakudziwa?
Kuyezetsa thupi kusukulu ndi zinthu zofunika kwambiri, makamaka, ngakhale kuyezetsa thupi pafupipafupi kwapachaka kumatha kungoyang'ana movutikira, kumapezeka kuti sikunali bwino, ndiye kuti kuyezetsa bwino kumatha kupeza vuto."
Chifukwa chake, kaya ndi makolo a achinyamata kapena achinyamata azaka zapakati pa makumi awiri ndi makumi atatu, ayenera kulabadira kuwunika kwakuthupi, osatenga mawonekedwe owoneka bwino, koma funsani dokotala kuti asankhe ma projekiti molunjika komanso momveka bwino.
Nthawi yotumiza: Mar-09-2023